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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

HomeBy SituationWe just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately, and some of what feels urgent is better decided in three months.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month. Families who make housing decisions in the first weeks frequently make them twice.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication. Lewy body in particular carries serious sensitivity to certain antipsychotics, which matters enormously for care planning.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives. This window closes, and closing it turns straightforward decisions into court proceedings.
  4. Call the Area Agency on Aging serving your county. Western Reserve AAA (Cuyahoga, Geauga, Lake, Lorain, Medina) or Direction Home Akron Canton (Summit, Portage) can point you toward local early-stage support programs and caregiver education.
  5. Understand what memory care will require later. In Ohio it means a written special care unit disclosure under OAC 3701-16-07(F)(5), not a separate certification. Knowing that now saves you touring places under the wrong assumption about how quality is verified.

Questions Cleveland families ask

What does long-term care insurance typically cover for a senior in Ohio?

Long-term care insurance policies vary by contract, but most cover some combination of nursing home care, assisted living, home care, and adult day care up to a daily or monthly benefit cap and a lifetime maximum, after an elimination period. Ohio does not regulate benefit levels directly; what a specific policy pays depends entirely on its own terms, so families should review the actual policy document rather than assume standard coverage.

How does the cost of in-home care in Ohio compare to moving to a facility?

According to the 2025 CareScout survey, a non-medical caregiver in Ohio runs about $34 an hour, while assisted living runs a median of $6,103 a month. At roughly 20 hours a week, hourly in-home care can cost less than assisted living, but full-time round-the-clock in-home care quickly exceeds facility costs since hourly rates add up fast across 24-hour coverage.

What does Ohio's Long-Term Care Ombudsman do, and who covers Cuyahoga County?

Ohio's Long-Term Care Ombudsman Program advocates for residents of nursing homes and residential care facilities, investigating complaints about care quality, residents' rights, improper transfer or discharge, restraint use, and abuse or neglect, free, confidential, and only with resident consent. Cuyahoga County falls under Region 10A, Eastern Lakefront, served by the Long-Term Care Ombudsman of Cleveland (LTCO) at 1-800-365-3112, which also covers Geauga, Lake, Lorain, and Medina counties.

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